Thursday, 18 December 2008

I am a member of the Kent and Sussex ME Society as were the Gilderdales. As fellow sufferers we all felt very strongly about the need to make our feelings heard about the injustice of this case. The press are guilty of lessening the severity of Lynn's condition by referring to ME as "a flu-like illness", "yuppie flu" and other terms which do not even begin to describe the true reality of the life-destroying effects of this illness. Many of our members constantly struggle as Lynn did to simply get through another day and our hearts go out to Lynn's family. We understand better than most how hard it must have been to see their precious daughter wasting away day after day and how hard it must have been for Lynn herself to come to that decision that she simply couldn't go on. I hope by making this blog available, we can let the government know how important it is to start funding some serious research and to improve the system for people like Lynn who are in such a desperate situation and believe me there are far more than you think!!!! The NHS needs to start doing more research into therapies for ME other than the tried and trusted therapies they rely on which clearly have value for other illnesses but do not necessarily work for ME. ME is a very complicated illness which has a broad spectrum of symptoms and it is highly unlikely to find any one therapy that will "cure" all of the problems. We need more funding for research into the causes and potential "cures" for this debilitating illness and we need to raise public awareness of how devastating this illness can be.

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